Tag Archives: Psychological Sciences

Storm Train

Throughout Breast Cancer Awareness Month (October), the Building Resilience in Breast Cancer Centre (BRiC) is sharing stories, told first-hand by women who’ve experienced the illness. Here, Sara Williamson, Writer and Chair of the Mid-Yorkshire Breast Cancer Support Group, shares her journey.

image of Sara Williamson quote

So, after a mastectomy: node clearance (as 14/17 lymph nodes were affected), then chemotherapy, sepsis delaying radiotherapy, more surgery due to infections, Herceptin being stopped and started due to heart failure twice, then the Zoladex harpooning, followed by reconstruction, reduction, lypo filling – that filled four years from 2015 – 2019. That was the treatment plan! Nothing went in a straight line! The train kept derailing and diverting. Nothing prepares you for the side effects. Having to relearn to walk again and use my arms was an upward challenge.

Cancer disrupts your career, friendships and day to day living. I remember people being scared of me, the sad looks, no close proxemics. I was a reminder of the possibility of death and subjects always changed so that they did not have the burden of carrying my illness.

So, grade 3, stage 3c with a 40% chance of living. Five years was the predicted life expectancy, if I completed all treatment. I fought to continue treatment as was bloody minded enough to prove that those stats would be wrong. You would think after completing four years of treatment that you would be relieved, but the truth is that psychologically and emotionally the clock starts ticking backwards and the mind plays tricks on you. There’s the whisper in your ear that means that you have one year left to live, and reaching the five-year mark is supposed to be good, right!? People don’t realise that although alive you feel half dead with the side effects.

Every blood test recalled, mammogram, urine test and medical review terrifies me, so much so that there are sleepless nights until a recurrence is ruled out. When the word ‘cancer’ hangs over a cancer survivors head, it can be emotionally paralysing, making decision-making a challenge. New unexplained aches and pains cause fear of recurrence, and anxiety can be triggered by sounds and smells in hospital waiting rooms. Knowing your own body helps distinguish and recognise changes, but to what extent are we vigilant? Checking daily is obsessive but like a form of necessary obsessive compulsive disorder (OCD).

There’s emotional grief with enforced menopause and the loss of fertility, even if you never planned to have children. Body image, scars and disfigurement mean that you can’t relate to old friends in the same way. It’s difficult losing part of your body especially one so visible, and one which defines you as a woman. There’s frustration at life interrupted. Trying on bras and t-shirts that never seem to fit. Life and the body is lopsided.

Words all seem to have new meanings: ‘Warrior, fighter, survivor’. There’s no emphasis on one’s quality of life, or acquired disabilities, or new health issues. For secondary metastatic breast cancer patients, the word survivor seems to optimise the gift of life inappropriately. Then there’s guilt and grief at hearing of friends that have not lived. You are back on that storm train again.

Further information:

Learn more about BRiC

Share

Supporting parents, carers and educators during the pandemic

Over the past year, Birkbeck’s Access and Engagement Department has teamed up with the Psychology for Education BA: reaching out to parents, carers, and educators in the pandemic. In this blog they outline how they are supporting those who face barriers entering higher education in a virtual world. People in a classroom with a person speaking Social interaction and peer support are invaluable to all of us, and for children and young people isolated from their friends and usual routines, it has been an especially tough year. Parents, carers and educators have also been hit hard, having to adjust to online learning and struggling to find time for their own needs while juggling online learning, work and caring responsibilities.

Recognising these increasing pressures and following the launch of Birkbeck Inspires last year, Ana Da Cunha Lewin, Senior Lecturer and Course Director for the Psychology for Education BA contributed a series of online lectures for parents and carers. These covered coping with anxiety during lockdown, exercise for wellbeing, and nurturing resilience. At Access and Engagement, we were delighted when Ana agreed to work with us to deliver a five-week taster programme on the subject of Psychology for Education with a focus on children’s learning, wellbeing and resilience.

The Access and Engagement Department aims to support those who face barriers to Higher Education to take a step into formal education. This taster programme provided a space where people could come and learn more about the subject and apply it to their life as parents, carers or at work. It also gave participants a chance to explore what university learning is like using Moodle, seminars on MS Teams and pre-recorded video content.

We had 30 people without a first degree join us, with ages ranging from 20 to into the 60s, and an array of different life experiences. Working with our Trade Union partners, a third of our attendees heard about the course via Unison or the Public and Commercial Services Union. Participants shared their experiences of their own schooling and parenting, or their work in schools or youth work.

Ana da Cunha Lewin said: “It’s been a pleasure to work on the Psychology for Education Taster Course with the Access and Engagement team; planning was really well-supported and the team made the preparation very straightforward. It was also an absolute pleasure to teach a really interested, engaged and enthusiastic group who made the sessions lively with many interesting discussions. A really positive experience and I would be very happy to take part in the programme again.”

Feedback from participants was positive with one person commenting: “Ana and Vanna were magnificent educators and their passion and enthusiasm for the subject has been infectious!”

We’re looking forward to running a similar programme with Mike Berlin and Tim Reynolds from the History and Archaeology Certificate of Higher Education later this year. For more information about our Taster Programmes and Access and Engagement’s other work take a look at our newly revamped web page.

Share

Dr Clare Press discusses life as a scientist

Dr Clare Press reflects on her parents’ encouragement of her inquisitive mind, and her support for measures to increase the representation of women in science

Tell us a bit about who you are in a few sentences.

I’m a Senior Lecturer (Reader from October) in the Department of Psychological Sciences, and I’ve been faculty here since 2012. I’m also Assistant DeanPhoto of Dr Clare Press, Lecturer, Department of Psychological Sciences for Research for the School of Science. I run the Action Lab where we study questions relating to how we move around and perceive our world. We look at how someone behaves (e.g., close monitoring while they pick up a cup or press a button), and what they report seeing or hearing, and relate this to what is going on in the brain to allow them to act or perceive. Neither action nor perception are simple jobs for the brain even if they seem effortless to us. Once we understand how these systems work we can apply this understanding to individuals with various conditions who struggle with these basic tasks, to understand what may be different.

What has the lockdown period taught you?

That I am quite happy to be at home. I like my family (most of the time), enjoy my job, keep up with other friends and family over video, and I miss the other parts of my previous life less than I expected. Of course we need the labs to be up and running again as soon as possible but I can imagine working from home more once the offices are open again. I have found the period painfully exhausting, because we have three young children (ages 5, 3, 3) who have been ‘locked up’ at home with us. But if I look past the exhaustion and the fact I’ve had far too much to do, I’ve generally been quite content with it in a way I may not have imagined.

A person is either scientific or religious in their outlook…What are your thoughts on this?

I think the statement is too simplistic. Both science and religion aim to answer life’s big questions, and it is sometimes speculated that once science has an answer to a question there is no need for religion anymore. However, science is unlikely ever to answer everything because it requires that the system we are trying to understand is of a complexity we can fathom. This is unlikely to be true of everything as human intelligence is limited. We cannot comprehend limitless time or space, for example. Many also believe that higher powers relate to the underlying causes of phenomena understood via scientific methods (e.g., natural selection). The element of religion that consists of moral codes for life is of course not at odds with science either.

What or who influenced you to enter the field of Science?

I have always loved science, which I attribute mainly to my parents fostering such an inquisitive character and excitement to understand how the world works. They were both passionate about science and clearly enjoyed explaining underlying causes as I grew up. They did not believe in ever telling a child ‘because I say so’, believing that children should be discouraged from simply accepting what they are told and that children are interested in understanding and interrogating how things / society works. The fruits of their labour were clear by the time I was 5, when I told my grandma it was implausible that we breathed all the time – that may be true for her but certainly not me, and surely I would notice if I did. So it was definitely my parents who generated my curiosity in understanding how the world works, and I was certain by mid teens that I would study psychology or physics at university.

What have your experiences been, as a woman in Science, throughout your career?

I am passionate about science and would not trade the career. In few other professions do you have the freedom to ask whatever questions you fancy and the constant discovery is especially stimulating.

99% of the time I do not think of myself specifically as a woman in science. Being a scientist is a large part of my identity but being a woman less so. The data certainly suggest that people perceive me differently because I’m a woman. To use a collaborator’s words, “(I) am a short, blonde woman who laughs a lot and wears cardigans and jeans”, which will mean implicit biases stacked against me. For the most part I feel respected by people in my field, but I will not know if anyone secretly ascribes my successes to collaborators! I’d say my everyday experience is one where I’m perfectly at ease with my treatment as a woman, but at the daily level I am largely surrounded by people who have chosen to work with me (in my group or in collaboration).

I occasionally notice treatment where I wonder whether life would be easier if I completely fitted the typical male scientist mould. For instance, without checking my background, people have occasionally explained to me – in great detail – theories and findings relating to my own expertise. The classic ‘mansplain’ – and I am without a doubt that this happens more to women. Some flag work from my lab, linking it only to male co-authors and not me. Not frequently though. With particular instances of behaviour you can rarely know the true underlying reasons so I try not to dwell on it. However, there is serious work to be done in overcoming these biases given we know most people hold them. It will presumably take a long time for implicit biases to disappear. They follow centuries of assumptions that men are better at science and structures resulting from those assumptions – where fewer women enter science, and when they do, they don’t always get the credit they deserve. I therefore strongly support measures aiming to counteract these biases, e.g., approximately equivalent ratios of men and women for conference presentations and grant awards. At the moment I see these as measures to counteract the belief biases but that changes to the beliefs themselves will take longer. However, we can hope that with time – if insightful women are equivalently represented in the highest positions – the biases will reduce and ultimately disappear. There is an extensive focus in universities now on these initiatives, especially given Athena Swan. I think it’s important to remember that the aim is never Athena Swan itself, but facilitation of the scientific enterprise by having all of the best brains onboard rather than a subset.

Einstein himself has credited a woman with helping him to formulate his general Theory of Relativity. Yet history has shown that female scientists have often been overlooked for their contributions to science, with men often receiving the credit for major advancements. Tell us about a woman in Science who we should know about.

My PhD supervisor, Prof Cecilia Heyes, is outstanding. She is the perfect role model of a scientist, preoccupied by the generation of empirically testable theories of cognition and slotting together all the pieces of the empirical jigsaw. She thinks long, hard and deeply about any problem, and carves theoretical reasoning at appropriate joints that can be interrogated via scientific methods. She also provides the perfect role model of a PhD supervisor. She didn’t appear to see PhD students solely as a pair of hands to help pursue her own endeavours, but people she should properly train in the skills of academia. She spent hours with us each week debating theoretical nuances and passing down her theoretical wisdom, as well as explicitly encouraging challenge. She says she attracted students who enjoyed that element of science, but the atmosphere was also one where every view was given time and deconstructed. She gave swathes of time to training us how to write and give talks – e.g., always listening to dry runs before conferences – and told us she would be a mentor for life upon completion. I lucked out having a supervisor who was both so sharp academically and so nurturing, and think Celia should be celebrated on both of these dimensions.

This month marks 100 years since the birth of our very own Rosalind Franklin. How far have women come since then, in terms of their contribution to the field?

Prof Angelica Ronald and Dr Emma Meaburn, both from Psychological Sciences, have recently been running events inspired by Rosalind Franklin – highlighting many of the particular contributions of women to science. Rosalind Franklin is a good example of the fact that women have been making huge contributions to science throughout history, but perhaps not always receiving due credit. Therefore it may make more sense to speak of changes in how women are treated. Certainly explicit biasing against women is unacceptable these days, but implicit biases are much harder to address.

What more can be done to encourage more young girls and women to become scientists?

I assume this will partly require developing a passion for science in girls from infancy – as with boys. Encouraging them to search for answers and not being afraid to challenge what they hear. We may think society is now more aware of biases in the way we raise children but it doesn’t always translate into behavioural change. Some teachers and nursery staff widely talk about particular activities that will appeal to the boys or girls, without thinking about the repercussions of their statements. I was told during maths at school that I would likely find 3D geometry more difficult due to being female (!). It just irritated me but assume many may be discouraged by this. We need to watch how we raise children and the beliefs we engender with our comments.

It is also important explicitly to promote science to girls and women. For instance, Prof Essi Viding at UCL has received a Royal Society award to raise the profile of women in STEM with workshops and other initiatives aimed at schoolgirls. These initiatives aim to address the reasons for girls dropping out of science during A level years – i.e., partly low confidence and partly because of concerns surrounding working in a male dominated area. Additionally, I am part of the ‘SOFAR’ network – led by Dr Trudi Edginton and Dr Gilly Forrester – dedicated to supporting women in research through their careers by providing expertise, advice and support through mentorship. If we provide girls and women with good role models and good support, then with time men and women will become more equivalently represented.

What do you see as the most significant impact of science on the world?

At the moment, the development of vaccinations against infectious diseases.

If you could be doing anything else, career-wise, what would you be?

At school I told the careers adviser that my two career deal-breakers were that it should be predominantly maths-based and involve largely working by myself. Their data-crunching exercise came back with the answer that I should be an Actuary. I disagreed, and in fact I can only really imagine working in another academic branch of science! Very unimaginative of me. I should also point out that I especially enjoy many of the social elements of academia now, even if the idea of lecturing to 250 students would have made me rule out this profession in my teens!

Share

Fear and resilience: Psychologist shares breast cancer experience

This post was contributed by Professor Naz Derakhshan of Birkbeck’s Department of Psychological Sciences. The article first appeared on the Huffington Post UK blog on Wednesday, 23 March 2016.

What a Cognitive Psychologist Learned About Fear and Resilience When She was Diagnosed With Breast Cancer

It was the spring of 2012, and I remember well the exhilarating feeling of being promoted to the title of full professor within only six years of my first appointment as lecturer at Birkbeck University of London. Previously, my research was focussed on understanding what makes us vulnerable to emotional disorders like anxiety and depression and how we can overcome vulnerability and practice resilience. Cancer, however, did not care that I had been awarded a prestigious fellowship to continue my work in the prime of my life, when I was diagnosed with multifocal invasive breast cancer on January 2nd, 2013. I was in my 30s, and my daughter, Ella, was just under three years of age.

Professor Naz Derakshan

Professor Naz Derakshan

To say that my whole world turned around is an understatement because every day since that day my world has been changing in an emotional and physical roller coaster that I continue to challenge. I am a mother and an academic. And I have had to face my mortality so early having a dependent child who means everything to me. While I have so far survived the storm of diagnosis and treatment, the storm, however, never left. The sound of the rain reminds me that lightening can strike again. Will I survive it next time? Or will I be washed away? I am reminded of the anticipation, the expectation: the fear of recurrence. The fear that can distract, interfere and apprehend. “But, you have become an integral part of my life, so I shall take you forward with me”, I say.

Using fear

I feel lucky that I am able to continue my work, but cancer is never far away. I am pleasantly distracted by a paper that is accepted for publication; I marvel that I have been invited to give a distinguished lecture at an International Conference for Stress and Anxiety Research. I start to prepare my talk. I hear the sound of the lightening in the far distance, I stop. I turn to my daughter and start playing hide and seek (her favourite game), and the voice is somehow louder. “I hear you”, I say to my fears. “I feel you. Perhaps you can guide me”. So, I continue, still fearful.

Three years down the line, I still continue to be haunted by my cancer. Like the background music to a movie it’s always there, singing the trauma that I have endured. Approximately, two-thirds of women with a breast cancer diagnosis suffer PTSD (Post-Traumatic Stress Disorder) and this can make them prone to anxiety and depression later. I love exercising, but frequently go through chronic fatigue and am still suffering the well-known ‘cognitive decline’ or ‘chemo-brain’. Yet I am expected to function to my full capacity, what the storm left of me. Of course I will never give up, I am grateful for a second chance. And this goes for all the 57,000 people who are diagnosed with breast cancer in the UK, every year. If they are given a second chance.

Understanding resilience

What is resilience I ask myself? Common perception sees resilience as mental toughness, fighting the fears. It’s about positivity. Yet, this ideology seems far-fetched, the fear is very real. Rather, resilience, I have learned, is about flexibility, adapting and adjusting: accepting our fears, and the strength to embrace and harness them. Yes, we are scarred but the scars do not define us. The scars signal our gratitude and grit, and the fears that mark what matters to us. Resilience helps us listen to our fears. So, how can we learn to be resilient, I ask myself.

Read Professor Derakhshan's original blog on Huffington Post UK

Read Professor Derakhshan’s original blog on Huffington Post UK

I set up the educational Research Centre for Building Psychological Resilience in Breast Cancer on October 2nd, 2015, with this purpose in mind. To improve cognitive function towards resilience using interventions that exercise brain function. Our private group has over 330 members in less than five months.

And our centre’s blog: Panning for Gold, showcases the many fruitful ways our amazing members discuss their growth from the trauma they endure, through works of art, writing, and science. I would not have been able to sustain and promote the aims of the centre without the vital input of Tamsin Sargeant and Vicky Wilkes who run the centre with me. I have learned more from other women than anything in my academic work, we are more vulnerable than we think we are; we are more resilient than we think we are. Because, from vulnerability stems strength.

Find out more

Share