Tag Archives: Disability

“Not all Deaf people know sign language and not all sign languages are the same”

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Psychology student, Silvia Janickova discusses how inclusivity and accessibility have got considerably better but there is still a long way to go.

a pic of Silvia Janickova

Silvia Janickova

1. What are your thoughts on the significance of popular culture, especially film, in representing the experiences of deaf and hearing-impaired people?

One thing I would like to see more of is the representation of Deaf and hearing people interacting more with each other. CODA (the Oscar-winning film) and other films with Deaf or hard-of-hearing characters often portray hearing and Deaf communities as largely separate entities with the conflict revolving around the gap between them. I feel this is not reflective of the life richness that goes way beyond deafness versus “hearingness”.

2. What is the biggest misconception people have about people from the deaf community?

One of the misconceptions is that we are excellent lipreaders. In reality, lipreading is hard and largely a guesswork. Face masks during the pandemic have made the already precarious lipreading art even trickier.

There is also a gap between how many Deaf and hard-of-hearing people perceive themselves and how we are perceived by the society. Deafness is often seen as a “deficit” or impairment, but for us, the real issue is communication barriers and lack of inclusive environment.

Another misconception is that all Deaf people know sign language and all sign languages are same. For example, when doing my BSL courses in London, BSL used in Manchester had such a different accent that at times it felt like a whole new language for me!

3. Do you feel things have got better for deaf people, when it comes to understanding and inclusivity?

I think inclusivity and accessibility have got considerably better compared to even just a decade ago. That said, there is still a long way to go.

For example, and related to the film theme, cinema screenings often come unsubtitled so we cannot go and see the films we would like to watch.

Deaf people are also underrepresented in professional roles and there are persisting barriers in the job market.

Social events can be also difficult. In the end of the day, we are all humans and above all, we all want to feel that we belong. Many of us have learnt to be great pretenders and nod and smile at the right places. Simple things such as facing us, speaking clearly and typing things when it gets too noisy around can make a big difference.

4. What’s your own personal experience as someone who is deaf?

As a Deaf person who grew up entirely in the hearing world, finding way both to the hearing and the Deaf communities as an adult has been a journey for me. It has often been difficult, but it has also enabled me to meet many amazing people, both Deaf and hearing, and gain and wealth of experiences. Ultimately, all of this has shaped who I am, as a solution-seeker and a lifelong learner, not only in the academic sense, but also in terms of always learning something new about myself and other people.

5. What support have you received from Birkbeck?

As a substitute for spoken aspects of lectures, I use captioning or transcription and electronic note-taking. Studying as a Deaf student can be harder, since DSA (governmental funding scheme for communication support) only covers partial expenses for Deaf students. The pandemic has brought increased accessibility due to widespread use of automatic subtitles, but also additional challenges. However, the Psychology Department, where I study, and my disability team have been absolutely fantastic and really went extra mile to ensure the great studying experience for me.

The diversity of the student body has been also very attractive for me as a Deaf mature student. I am now in my final year and loved my Birkbeck experience so much that I am hoping to continue here for my Masters.

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Birkbeck academic makes the ‘Disability Power 100’ list

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Professor Martin Paul Eve (School of Arts) has been named on the Shaw Trust’s ‘Disability Power 100’ list, which celebrates the UK’s most influential disabled people. Here, he shares his own experience with a disability and speaks on both the ongoing challenging environment for the disabled community plus their heightened visibility.

Professor Martin Paul Eve

Q1) What does it mean to be one of the 100 finalists, selected from over 550 nominations?

This is an important award for me. My health and disability have played majorly detrimental roles in my life and it’s something I have to fight against almost every day. To be recognised as successful in spite of this is, I feel, extremely important, although celebrating the achievements of disabled people who do well should never be used as a comparator to people who aren’t able to ‘overcome’ their own challenges to the same extent. I am fortunate, in many ways, to have got where I am and luck plays a huge role.

Q2) Shaw Trust uses the annual event to highlight how businesses, and others, can champion more opportunities for the disabled. What progress have you witnessed at Birkbeck with respect to this?

Birkbeck is committed to the Disability Confident Scheme and I applaud that, but I would like the College to go further. I have co-chaired the Staff Disability Network for the past year and it’s clear that we have the opportunity to make a step change around disability in the same way that we have seen for gender and race. But it needs people to prioritise it.

Q3) In your view, what are the most critical issues facing the disabled community in the UK?

Disabled people, or people with disabilities (this terminology is contested), face continued persecution in their day-to-day activities. This should be unacceptable in the twenty-first century. That is why I am pleased to stand up and declare my status from a position of relative privilege. The ongoing impact of the pandemic also affects this group disproportionately. It is still not safe for me to leave the house and I remain in lockdown/shielding, despite the withdrawal of government support for people in this group.

Q4) What more can we all do to address those issues?

The visibility of disabled people does a lot to help. The Paralympics, actress Rose Ayling-Ellis on Strictly Come Dancing and the Shaw Trust’s list are all ways of showcasing the rich lives of disabled people, as people. But we also need a more empathetic society; one that values disabled people’s lives. In the past year, 60% of deaths from the pandemic have been disabled and vulnerable individuals. Writing this off as collateral is simply barbaric.

Q5) Disability History Month is being observed later this month (18 November). What value do you see from such events and how would you like to see people getting involved?

Disability History month is an important way in which the complex historical narratives about disability can be brought to greater attention and used to alter how disability is perceived in our present. For example, not many people outside of disability studies know of the ‘social model’ of disability, in which disability is seen as a socially constructed phenomenon. That is, rather than a person ‘having’ a disability, they are disabled by society. A good example is the use of stairs instead of ramps. It’s not that the person has a dis-ability to get to the top of the stairs, it’s that the societal choice to use stairs rather than an accessible ramp caused the disability. Disability history month is a time when we can celebrate the achievements of the disability rights movement and use this space to educate people about issues like this.

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The Disability Discrimination Act – what’s changed?

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This November we celebrate 25 years since the passing of the Disability Discrimination Act. In this blog, Mark Pimm, Birkbeck’s Disability Service Manager who is blind, shares his experiences as a university student and how the world has changed since the passing of the Act.

Mark Pimm with his guide dog, Sonny

Twenty-five years ago, on 8 November 1995, the Disability Discrimination Act was passed and it got me thinking about how student life has changed in a quarter of a century.  There were no tuition fee loans and a pint of beer in the Student Union bar cost a pound, but life was a lot more challenging for disabled students.  There were no disability officers, universities weren’t required to make provision for disabled students – in fact, before the Act, we had no legal rights.

There was a Disabled Students’ Allowance, but at that time it was so small I couldn’t afford a computer; all I had was a writing machine with 32 megabytes of ram.

Because I did not have a computer and could not read Braille, I did everything on tape.  I recruited a team of volunteers to read my textbooks onto tape. I drafted my notes for essays onto cassette tapes and listened back to the notes when I came to write the essay.  All my exam notes were put onto tape, and I listened to these to revise. To give an idea of the scale, I had over 500 tapes containing over 2,000 hours of recording. Even though I was organised, it often took me an hour to find the right point on the right tape.

In those days, being blind I knew I would never get a non-graduate job. If I wanted to work, I had to get a degree. I had no choice but to carry on despite extraordinary odds because if I didn’t, I would never work.

What would be the difference today? If I was coming to Birkbeck now, the Disabled Students’ Allowance would pay for a computer with specialist software and training to ensure I could use it to access our online learning. It would fund an electronic notetaker, who would provide me with notes from all my lectures by email.

The university’s virtual learning environment would be accessible to me and I’d have access to the teaching materials in advance of our lectures, enabling me to read, as well as understand the structure of the lectures, prior to attending them. I could use the platform SensusAccess to make the electronic documents accessible to me and access the Royal National Institute of Blind People’s audible book service.

The number of additional things I’d need to do for myself would be reduced. I’d have the time to think about my future career and with support like the Ability Programme would be able to develop the transferrable skills that might mean that I could progress straight from graduation to employment, as my non-disabled peers can do.

It’s truly remarkable and inspiring to see how far we’ve come, thanks to those campaigners in the 90s.

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Bringing our ‘whole selves to work’

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Last year we spoke to Richard Morely, an MSc Computer Science student who took part in Birkbeck Future’s Ability Programme, a scheme that helps students and alumni with a disability, neurodiverse or long-term health condition connect with a disability-confident employer. Richard undertook a placement at, the insurance company, Azur where he was tasked with improving the company’s interface.

Richard Morley, a Birkbeck student who took part in the Ability Programme

Richard Morely

Richard Morley, an MSc Computer Science student with a hearing disability, applied to the Ability Programme and was given a place at digital insurance company Azur. Richard had been in contact with Birkbeck Futures before joining the scheme and applied to take part in the programme because he had been out of the job market for a while and doubted his ability after a few unsuccessful interviews. He wanted the opportunity to improve his existing skill-set and boost his wavering confidence in the job market.

At Azur, Richard was given the role of Software Development Intern and tasked with improving the interface of the company’s application called Magic. This entailed improving the colour scheme using the brand guidelines and working on developing animated features for the app. In a previous company, Richard had felt very pressured which he did not find conducive to progression. The positive atmosphere at Azur, by contrast, allowed him to develop his skills and confidence. He developed a good relationship with his team and said that: “I found the work challenging because I was doing things that I hadn’t done in previous positions, such as programming and creating animation on the app.”

One of Richard’s biggest challenges at Azur was delivering a presentation about his project. He noted that in previous roles, “I never did presentations. Even if I was given the opportunity, I would be reluctant to do it.” But after receiving support from a colleague in the preparation and delivery, he found it contributed to improved confidence around his skill-set and employability prospects.

Reflecting on the importance of the work placements for people with disabilities, Richard said: “It’s good because lots of employers think that people with disabilities might not be able to get things done because they have certain problems that get in the way of work.” Being given placements such as these “demonstrates that people with disabilities are hardworking and for me personally, that I can adapt to any situation despite my hearing disability.”

Richard’s placement culminated in a job offer which he will take up after he graduates. “It made me feel like there are more opportunities out there for me. It’s created more connections and made me feel more confident in my abilities. I have a bright future ahead of me.”

Many of the employers that took part said that the scheme was important in opening their eyes to the way they could attract and accommodate employees with disabilities or neurodiverse conditions, and encourage an open dialogue about the individual needs of the employees. Tom Armitage, Head of Talent and Performance at the Telegraph commented; “we were able to craft work experience placements that were really meaningful” and said that it challenged his team’s way of thinking.

It is the experience of Richard and students like him that show why schemes like the Ability Programme are necessary to break down stigmas attached to people with disabilities and in turn allow people to bring their “whole selves to work.”

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