Tag Archives: Neurodiversity

A diamond in the rough? Or a universal design – one for all.

Dr Nancy Doyle (Founder and CRO of Genius Within CIC) and Professor Almuth McDowall ask where we can look for good research on neurodiversity at work and what are the most important knowledge gaps to fill. This lay summary of the research was composed by Nicola Maguire-Alcock.

We live in a time where there is an increased understanding that humans are all different, not only by our physical characteristics, but also how we think and behave. The term ‘neurodiversity’ was first termed by Judy Singer in 1999 to explain why humans naturally have a range of differences in our brains and why we behave differently.

Having an unusual neurotype can mean that there are large gaps between a person’s strengths and those things that they may struggle with, compared with a neurotypical person where the gaps are much smaller. There are a number of examples of neurodifferent conditions such as Autism, Attention Deficit and Hyperactivity Disorder, Tourette Syndrome, Dyspraxia and Dyslexia.

More recently, the term ‘neurominority’ has been used instead of neurodiverse in order to provide an understanding that those with an unusual neurotype are at a disadvantage in a range of daily life outcomes, in particular socially, in education and in employment.

Fortunately, understanding regarding neurodiversity has increased in these areas, however it is still a long way off where it needs to be. For example, in the workplace, even with initiatives and policies to support neurominorities, there is a lack of research that looks at the effectiveness of this support and there is not an approach that brings inclusivity from designing a job role through the life cycle of an employee.

Furthermore, as well as limited research in this area, there is also an unfairness in the research that currently exists on neurominorities and into the understanding into ‘what works’ to improve making working environments inclusive.

Firstly, there is an imbalance of research into this area, due to there being a large focus on Autism and mental health at the disadvantage to other neurominorities. ADHD, Dyslexia, DCD, and Tourette Syndrome are all under-researched considering how common these conditions are in society. This means that there is a large risk of ignoring other neurominorities in the work place and a lack of focus on what is needed to improve everyday lives in the working world.

Secondly, we do not have informed practice from those who are living and experiencing these issues. This would bring a huge benefit in understanding and improving the current initiatives that are already in place in this area.

Have a look at the following questions:

  • How do we design roles in a more neuro-inclusive way?
  • How do we hire to ensure all candidates can perform at their best during the process?
  • How do we contract ensuring that the terms and conditions of employment are inclusive?
  • How do we provide training which is inclusive?
  • How can we provide performance reviews which increase success, with inclusive delivery?
  • How can we change standard wellbeing services to support neurominorities’ needs?

Great opportunities as a business and for the individual can be gained as we take forward a new way of working which provides a simple, flexible, friendly model for Human Resources (HR).

In order to address this, it has been proposed that the Principles of Universal Design are applied through the employee life cycle. This provides a process for HR to follow in the workplace.

By using this, it provides the opportunity to create a workplace that works for everyone, which will really change the ‘can nots’ to the ‘can!’. Let’s not wait to miss opportunities that would limit your workforce, limit your company and increase the prevalence of staff becoming stressed or leaving. Now is the time to update your practice and apply this model.

Universal Design provides a set of principles that can guide HR to work at its best, at any point of the employment life cycle. There really is no better time but now to take action.

Please take a look at this illustration:

A flower design showing five strands: 1) Wellbeing 2) Hiring 3) Contracting 4) Training 5) Performance Review 6) Wellbeing

Further Information:

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Introducing the Centre for Neurodiversity at Work

Accessible Summary

The Centre researchers are Almuth McDowall and Nancy Doyle. They found that science has ignored lots of important questions about neurodifferences. The found most research looked at children not adults or work. It didn’t think about race or gender or sexuality. They wanted to help.

They are working with a board who have different backgrounds. The board are neurodiverse. The Centre wants to make sure that people who are being studied are part of decisions. The Centre wants to help employers get better at including. The Centre wants to help neurodifferent people reach their potential.

Visual Summary

Infographic showing some of the key statistics shared in this blog.

What is the Centre for?

The Centre for Neurodiversity Research at Work (C4NRAW) is spearheaded by the Department of Organizational Psychology in the School of Business, Economics and Informatics at Birkbeck, University of London and Genius Within, a social enterprise focusing on HR and inclusion services. We’d like to introduce ourselves and our research priorities.

How it started

The Centre is Co-Directed by founders Professor Almuth McDowall and Dr Nancy Doyle, both Organizational Psychologists known widely for their expertise in Neurodiversity and organizational psychology. This brings a holistic perspective for this important topic. They met when Almuth supervised Nancy’s PhD, which was an evaluation of coaching as a disability intervention for Dyslexic adults. The PhD included a review of neurodiversity research, in which we discovered that hardly any research is focused on adults. The small amount of funding and publications is not in balance with how many adults there are with different neurotypes. For example:

  • Even though there are almost as many people with Tourette Syndrome as Autistic people, there is almost 50 times as much research about Autistic people as Tourettes.
  • There is also 50 times more Autism research than Dyspraxia research, even though there are 5 times as many Dyspraxic people as Autistic people.
  • Around 63% of ADHD research is aimed at children.
  • 94% of Dyslexia research is aimed at children and literacy.
  • Adults have different concerns compared to children, like memory, organization, and time management skills.

We also noticed that there were very few studies looking at intersectional exclusion, by that we mean the added layers of bias and discrimination faced by those who are female, belong to the Global Ethnic Majority or LGBTQ+ communities. Autism research tended towards white cishet[1] males, frequently from privileged backgrounds. Most of the dyslexia research (60%) involved scanning the brains of kids to find the bits that are “broken!”

There were only a handful of papers related to ND[2] strengths, though we quickly summarized these and set about publishing them. We started evaluating what “works” so that we could inspire employers to provide the right support.

Our Mission

Our ongoing mission is to focus on addressing the missing research and linking it into employment practice. We want more employers to feel confident in operating neuroinclusive practices so that we can bust through the disability employment gap for invisible disability. Employers often have misconceptions about what neurodiversity means. For example, it is often assumed that dyslexia is difficulty with reading and writing, whereas it can manifest as difficulty with memory, time management, organisation and wellbeing.

Around 22% of the entire population are neurodivergent, but in the UK, just 53.6% of disabled people are currently in work, compared to 81.7% of those who are not disabled. Many more disabled people could succeed in the workplace if they were given access to reasonable adjustments.

Neurodiverse people bring unique qualities to the workplace, including creativity, focus, strategic thinking, innovation and problem-solving. We want neurodivergent adults to work at their best, more of the time. We want to reduce unnecessary barriers to work, and in work see more neurodiverse career progression.

We recently published a paper called “Diamond in the Rough” in which we set out all these research priorities and how we would like to tackle them. Please feel free to click through to our research page if you would like to learn more about what we’ve already achieved.

Centre Membership

Our ambition is for the Centre to be staffed and led by a neurodiverse team: that is a balance of generalists and specialists complementing each other. Nancy is an ADHDer, and we have an Advisory Board which is comprised of researchers, practitioners and those with lived experience. We are currently seeking representation from the LGBTQ+ community, do feel free to reach out, the Board meet twice a year to review research priorities and advise the Directors on ethics and sharing results.

We have several ND PhD and professional doctorate students who are part of the Centre by virtue of studying a Neurodiversity or Disability (including neurodiversity) focused PhD at Birkbeck[3]. They are Uzma Waseem, Charlie Ekton, Jessica Dark, Greg Swaysland and Ben Morris.

We’ll be using this blog to communicate our research findings in an accessible format and start conversations with our wider community. We’ll post calls for research participants and would like to work with our donor team on corporate funding for specific projects. Do feel free to reach out and to join our mailing list if you haven’t already!

We are working towards a world where neurominorities equal specialism rather than exclusion and work is neuroinclusive. We are pioneering the design, evaluation, and practical implementation of Universal Design for Human Resources. We are walking our own talk and making sure that there is “nothing about us without us” in ND research at work. And we are super excited to only just be getting started!

Further Information

[1] “Cis” meaning not transgender and “het” meaning heterosexual.

[2] We’re going to use ND as an abbreviation for neurodifferent / neurodivergent / neurodiverse as we know all three of these can be preferred. We also use Neurominorities as an umbrella term for ADHD, Autism, Dyslexia, Dyspraxia, Dyscalculia, Tourettes and more.

[3] Birkbeck was established with the sole purpose of educating working people through flexible education scheduled so that people who are in work can take part. Therefore social justice has always been at the heart of Birkbeck’s mission.

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